Remembering Bruce

Yesterday our friend Bruce “slipped the surly bonds”1 of his ALS-ravaged body and departed this earth for whatever lies beyond.  This has been long anticipated, and it is in many ways a release and a relief for him and for those who love him.  But that doesn’t make it easy for those of us he left behind, especially his wife Lynette.  I myself am just at the front end of coming to terms with his death.

Bruce made several appearances and contributions to Elder Chaplain, so much so that many of you have told me you feel you know him, even though you have never met.  So I feel the need to share his passing with you, along with a few brief remembrances.

When I launched this blog in 2022, Bruce offered me the photo at top, which he took of Comet Neowise in 2020, to use as my home page photo.  We loved the notion of a bright light burning itself out gradually while heading toward an even greater light over the horizon.  I find comfort in imagining Bruce now basking in that even greater light.

As Bruce’s ALS progressed, he and I embarked on a series of conversations we called “Hard Earned Wisdom,” which culminated in the post Choosing Life, One Day at a Time.  This post only begins to capture the wisdom I feel I have received from this remarkable man.

Over the past year Bruce and Lynette inspired a group of us to undertake a challenging climb on behalf of ALS Northwest, which supported them in living the fullest life possible despite ALS.  The posts Practicing Hope—For ALS and The Abode of the Gods attempted to capture this uplifting experience.  We are all deeply appreciative of the contributions made to ALS Northwest by readers of Elder Chaplain.

A year ago Bruce asked me to serve as “emcee” for his celebration of life, and the conversations Bruce, Lynette, and I have shared over the past two months have been among the most intimate I’ve ever experienced.  As Lynette said at one point, it’s surreal, even weird, for loved ones to sit around a circle discussing the memorial for one of the participants, yet it is also lovely and wonderful—something we might all wish for.  We reviewed the final draft of the program—what felt to me like Bruce’s last piece of unfinished business—two days ago, and we agreed his work was complete.

Now comes the hard part—living without Bruce.  Hard for all of us who love him, but especially for Lynette, and their children and grandchildren.  As a community of family and friends, we will gather in a few weeks to celebrate Bruce just the way he wanted.  All too often we attend gatherings like this, share deeply heartfelt condolences, then return to our day-to-day lives, leaving family members to navigate the long road of grief on their own.  My sense—and commitment—is that this will be different, that those of us in Bruce and Lynette’s circle have been so transformed by their journey that we will stay on that long road with Lynette and family—just the way Bruce wanted.

  1. From “High Flight” by John Gillespie Magee, Jr. Bruce’s father was career Air Force, and a passionate amateur aviator. Bruce loved telling stories of his father’s love of flight. ↩︎

We All Deserve Dignity

I received a referral from a social worker one morning for Lila, a woman in her fifties with advanced metastatic cancer, who was in emotional distress.  She’d been living on the streets and had been found down, in severe pain, by an outreach worker.  She’d been brought by ambulance to our Emergency Department, where she’d been seen many times, then admitted to our oncology unit.

“Good morning, Lila, I’m Chaplain Greg,” I begin.  Through tears, she gives me a welcoming nod, and I take a seat beside her.  “I understand you’re going through a really rough time.  I’m so sorry …”

She nods again.  “Thank you for coming.  I’m really scared, and I don’t know what to do.”

“You can tell me whatever you like—I’m here to listen.”

“The doctors told me the reason I’ve been in so much pain is that my cancer is cutting off my ability to pee, and it has grown to the place where there’s no way to work around it.  They said the best they can do is cut a hole in my belly and put in a stent so I can pee out of there.”

“That’s really hard, Lila.”

“I think I could deal with it if I had a place to live, but I don’t, and I can’t imagine dealing with this while living on the streets.  I’m terrified just thinking about dying in a doorway somewhere in a pool of pee.”

“Who are the important people in your life?  Can any of them help?”

“I’m real close with my daughter and her boyfriend, but they live in a tiny trailer and there’s no room for me.  My best friend Crystal lives on the streets like me.  That’s it.”

We sit in silence for a bit, then Lila continues.  “I asked my doctors how long they thought I had before my cancer kills me, and they said maybe six months.  I asked them how long I‘d live if I didn’t do what they recommended, and they said I’d probably die of kidney failure within five days.”

“Wow … that’s really tough, no wonder you’re struggling.  What thoughts are rising for you as you think about this?”

“I’m gonna die pretty soon no matter what.  I’m so afraid of going back to the streets and dying there that I’m beginning to think I’d rather just die here now—at least I’d be dry and warm.  But the idea of dying so soon is really scary.”

Our conversation turns toward Lila’s thoughts about faith, what happens after we die, and what feels most important to her at end of life, whether in five days or six months.  She thanks me for taking the time to talk through this, and says she wants to just sit for a while before making any decisions.

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Decisions like the one confronting Lila are among the most difficult we ever face, and as medical science advances they are becoming more common.  Many people never face such a decision—they die suddenly and unexpectedly from accidents, overdoses, heart attacks, aneurysms, etc.  Those suffering from terminal cancer or other progressive fatal diseases, however, are often presented with treatment options intended to extend lifespan, but which may also diminish the quality of the life that remains.

In navigating such care decisions, dignity must always remain at the center.  What “dignity” means can depend on the individual and their situation, but most people have clear ideas about what it means to them, and they value it highly.  Wikipedia defines dignity as “the right of a person to be valued and respected for their own sake.”  It is not one consideration among many, it is a core human right.  Treating someone with dignity involves two other interconnected ideas:  the Golden Rule—treat others as you would want to be treated—and agency, the ability to choose one’s own course of action.[1]

When making complex decisions about medical care, it can be difficult to discern one’s own wishes amidst the many, sometimes conflicting, opinions offered by others.  Doctors and other care providers might not agree among themselves, and family members or friends may express preferences that might or might not align with medical advice.  In offering these opinions, even those with good intentions might be strongly influenced by their own interests or values, without adequate consideration of the patient’s.

It can sometimes be helpful to ask, “What would you do if you were in my situation?” (the Golden Rule), and perhaps to follow up by asking why they came to their conclusion.  No two people are exactly alike, and it’s impossible for one person to put themselves in another person’s shoes, but an honest exchange regarding these questions can provide helpful perspective for the one facing a difficult decision.  In the end, though, the decision belongs to the patient, and treating them with dignity requires respecting their decision even if it’s different than what someone might choose for themselves.

This is rarely more difficult, or more important, than when making decisions regarding end of life.  “Death with Dignity” can be a polarizing term, as it is often associated with other problematic phrases such as “physician-assisted suicide.”  But for me, it means each person having the right to choose a course of treatment for themselves at end of life that aligns with their values and preferences, and to have their wishes be respected by others.  Despite the many complex issues surrounding this topic, I believe the desire for dignity at end of life is universal.[2]

◊

Two days after my first visit with Lila, I am once again assigned to the oncology unit.  I see that she is still there, and that her status has changed to “Comfort Care.”  I stop in to see how she is doing, and find her accompanied by two women.  Her complexion is a bit ashen, and at first she doesn’t recognize me, but then she brightens suddenly.

“Hi, Chaplain, thanks so much for coming by.”  She gestures toward the women.  “This is my daughter Destiny, and my best friend Crystal.”

“It’s so good to see you, Lila,” I respond, “and to see you surrounded by people who love you.”  I turn toward the women.  “Thanks so much for being here.”  They nod and smile through tears.

“I appreciate the time you spent with me the other day,” Lila says, then she pauses, catching her breath.  “This is what I wanted.  It means so much to have them with me now. And everyone here is so kind and caring.”

“Then I’ll leave you all to your time together.  I’m so grateful to see you comfortable and content.  I’ll keep you in my prayers.”

Lila died the following day.


[1] See the Wikipedia article “Dignity” for a wide-ranging consideration of the term.  In particular, “in 2008, The President’s Council on Bioethics concluded, ‘there is no universal agreement on the meaning of the term, human dignity.’”

[2] I consider “Medical Aid in Dying” (my preferred term) to be a relatively small (but important) subset of “Death with Dignity.” I plan to address it in future posts.

The Abode of the Divine

The seeds for my “Spirit Quest 2026” were planted many years ago.  They came to fruition this past July, when four fellow climbers and I, along with two guides, spent five days in pursuit of the summit of Mt. Olympus, in the heart of Olympic National Park.  Several of us, including our friends Bruce and Lynette, began discussing a climb of Mt. Olympus more than a decade ago, but when Bruce was diagnosed with ALS in 2021, these plans fell by the wayside.

Few diseases offer less hope than ALS, yet since his diagnosis Bruce has been practicing hope and inspiring others to do the same.  Last fall I proposed reviving the idea of climbing Mt. Olympus, but this time as a fundraiser for ALS Northwest, which has provided Bruce and Lynette with invaluable support.  Our crew of five came together quickly, and the way forward opened:  we found a guide service we all liked, ALS Northwest jumped in enthusiastically, and soon we had permits for our preferred dates.

Fundraising is an activity most people dislike—including us—but this was simply a matter of inviting people to participate in something larger than themselves:  to express support for Bruce and Lynette, even if not known by most who were solicited, and to practice hope for a future without ALS.  We practiced hope ourselves by setting a fundraising goal of $15,000 with no idea where it would come from, but in the end we raised $27,000 from 127 donors.

Mt. Olympus is named after the home of the gods of the ancient Greeks, and aptly so.  The trail begins in the heart of the Hoh River rainforest, which receives 140+ inches of rain annually, producing trees of extraordinary size presiding over a lush canopy and groundcover.  The scale of this landscape was the first of many reminders that we were but brief visitors to a world created and governed by forces more powerful than ourselves, and that we should tread respectfully, humbly, even reverently.

After traversing 12 miles of level valley floor the trail begins climbing, at first gradually, then with steadily increasing steepness, and each of us began encountering another form of humility: the limitations of our bodies.  For one of us, it was the lingering effects of a sinus infection; for another, foot blisters.  For myself, it was simply exhaustion from the exertion of ascending with a 50-pound pack.  After dinner on our second evening we gathered to assess our capacity for a summit push the next day; we each took inventory of what we felt capable of, and we developed a plan that fit each person’s desires and abilities.  Three (plus a guide) would rise early and ascend the Blue Glacier until an agreed-upon turnaround time; another climber and I (with the other guide) chose to rest our bodies for the return trip, then ascend to the Blue Glacier overlook to enjoy the view and await our companions’ return.

No one reached the summit, but in the end this journey delighted us all.  The vast expanses of glaciers and peaks were breathtaking reminders of the glory of our created world and our small place within it.  In this alpine heaven, it felt as if the boundary between the terrestrial and the celestial had parted, giving us a glimpse into the world beyond even if we couldn’t enter it.  As seasoned climbers, we seek the summit, but here it felt like more than enough to enter the Olympian abode of the divine, to share our hopes and prayers, and to leave offerings of gratitude:  for our own experiences, for the donors and well-wishers who supported our journey, and for all that Bruce and Lynette have brought to our lives.

Psalm 90:12, a favorite verse I have often reflected upon, says, “Make us know how few are our days, that our minds may learn wisdom.”  Increasingly, I encounter limitations not only of time but also of my body, and my hope is to gain wisdom from these encounters.  After my 70th birthday in 2025, I realized my days for undertaking this climb were growing fewer, as were the chances to honor Bruce and Lynette while he is still with us.  I am so grateful for the nudge to make this happen, and that Bruce was able to celebrate with us afterwards. 

This climb also helped me embrace the fact that, as I age, the list of things I can no longer do is continually growing, yet there also remains much I can still do.  Bruce has embodied this wisdom throughout his journey with ALS, and one of the best ways I can honor that is to “go and do likewise.”

Rosalie

As a chaplain, and as a friend, I often tell others, “Loss is unavoidable—the best thing we can do is show up and accompany each other through it.”  Today I invite you to accompany me through the loss of my dear friend Rosalie.

Rosalie has already been introduced to readers of Elder Chaplain, as she was a central character in my 2025 post “Here for Each Other.”  I invite you to revisit this post now for additional insights into my remarkable friend.  As mentioned there, the first impression Rosalie made on me was during a Quaker meeting in 2006, when she shared movingly of how she was coping with her metastatic breast cancer.  What I didn’t mention is that, six months prior to that post, Rosalie’s cancer sprang back to life.  It had spread throughout her bones, and this time there would be no respite.  Rosalie died earlier this month, surrounded by family.

Of all the words I might choose to describe Rosalie, “caring” and “integrity” rise to the top.  Rosalie was a physician, and caring is what she did in all dimensions of her life.  Her outward demeanor was reserved, and she could be direct to the point of bluntness, but her heart for life and for healing shone through.  Early in our relationship, she asked if she could speak with me privately as a larger meeting was breaking up.  She said, “You’ll need paper and a pen.”  She then proceeded, “You’re having your hip replaced next month.  Here are the things you’ll need that your surgeon may not be thinking of.”  Her recommendations, from icing machines to constipation remedies, proved invaluable.

Rosalie and I often served together on spiritual care committees for others at our Quaker meeting, and for several years we both participated in a group called Shepherds, focused on the broader needs of our community.  Rosalie frequently identified needs that no one else had noticed, and took actions that made sure those people felt seen and supported.  As mentioned in my earlier post, Rosalie convened a care committee for me when I was diagnosed with prostate cancer.  And she accepted my offer to convene a care committee for her when her cancer returned.

When Rosalie’s oncologist came into their first appointment after imaging showed a return of her cancer, she handed Rosalie a treatment plan involving aggressive chemotherapy.  Rosalie said she’d had Taxol before—and it was awful.  Speaking doctor to doctor, she asked: What is midpoint of the bell curve of survival under the proposed plan? Around five years.  And if she chose not to follow the treatment plan?  Two and a half years.  Rosalie felt she’d rather have two and a half good years than five years of potential misery.  And that was that.

Rosalie’s perspective was one of profound gratitude.  “Of course I’d rather live a longer life, but mostly I’m thankful for the 18 years I was given after my initial diagnosis and treatment.  Then, my daughter was in high school; now, I’m going to see her get married.  I’ve been given so much life over these 18 years, how could I complain I didn’t get more?”  It’s a gift to be in the presence of someone as deeply grounded as Rosalie.

After a roller coaster of treatments intended (and sometimes succeeding) in improving her quality of life, Rosalie entered hospice last November. Soon she felt much less pain.  A few weeks later she sent me an astonishing email, entitled “What Shall I Do While Waiting to Die?”  Her goals:

  • Increase my aqua jogging time slowly to 30 minutes (from 20 now)
  • Step dance holding on to the refrigerator handles three times a day
  • Finish another baby quilt
  • Wait for spring to arrive so that I can again walk in the garden
  • Smile a lot and try not to watch people’s amazement when I tell them that I am in hospice

I’m so happy she had the chance to accomplish all of these goals during her remaining months.

Which brings me to the topic of quilts …  The photo accompanying this post is of the quilt Rosalie gave me when I was recovering from surgery for my prostate cancer.  She made one for my daughter after she underwent a difficult surgery.  She made a large one for our Quaker community to remember her by, and when she presented it to the community last September, she shared these words.  “I love giving away things that I have made.  It gives me joy to think that someone will warm their knees under a quilt that I have made.”  (As I have, countless times.)  She continued, “Many of my quilts have spoken to me over the years about community, and this one also speaks of community.  That each of us has a unique gift to each other, and together—together—we make something greater, stronger, and more beautiful.”  I have learned so much from Rosalie about how to be in community, and I have sought to emulate her spirit as I nurture my own communities.

Rosalie began that presentation by quoting from a card she had received, which she thought captured well how she tried to approach quilting.  I think it applies equally well to how she approached life.

Advice From a Glacier
Carve your own path
Go slow
Channel your strengths
Smooth the way for others
Keep moving forward
Avoid meltdowns
Be cool

Practicing Hope—for ALS

Regular readers of Elder Chaplain know that people I hold dear have been stricken by ALS (also known as Lou Gehrig’s disease), a progressive, deadly neuromuscular disease.  For some, like my friend Ron or my chaplain colleague Jack (profiled in Best. Life. Ever. and Operation Chaplain Splashdown), the journey from initial symptoms to diagnosis to death spanned less than a year.  My friends Bruce and his wife Lynette (pictured above), on the other hand, have endured over five years since diagnosis, and Bruce is still with us today despite severe disabilities.  All of these people have confronted this disease with unimaginable strength of character.  As Reader Steven commented, “May the great spirit we all share grant me such grace.”

Last winter five friends of Bruce and Lynette—Lisa, Patty, Wendy, Gayle, and I—who all came to know one another through mountaineering, committed to climb Mt. Olympus, the centerpiece of Olympic National Park, in Bruce and Lynette’s honor.  This climb will benefit ALS Northwest, a nonprofit that has provided Bruce and Lynette with life-sustaining support, supplying adaptive equipment (wheelchairs, bed lifts, etc.), and connecting them with a community of fellow ALS travelers.

The guiding theme of Elder Chaplain since its inception has been “Practicing Hope Amid Loss,” and I can’t think of a better way to put these words into action than to pursue this goal to benefit this cause.  ALS is a disease that, at face value, offers no hope—it progresses relentlessly and is virtually always fatal.  Yet the people I know who have been afflicted by this disease have each found ways to practice hope in spite of their diagnosis.  That, in turn, has inspired hope in all who have known them.

ALS Northwest, along with other affiliated organizations, has been a crucial source of hope for my friends, helping them live their lives to the fullest despite their ALS.  ALS Northwest also uses their resources to advance research for new treatments, with the vision of putting an end to ALS—offering hope that this horrible disease will someday no longer afflict future generations.

I want to invite you to join our team—Peaks With Purpose—by following our journey, by learning more about our stories, and if so led, by donating to ALS Northwest.  We are covering all of our own costs for the climb, so 100% of your donation will go straight to this amazing organization.  Bruce and Lynette have been tireless fundraisers for ALS Northwest ever since Bruce’s diagnosis, and it is an honor to carry this cause forward.

To learn more about Bruce and Lynette, please see my Elder Chaplain post Choosing Life, One Day at a Time. 

To visit the Peaks With Purpose fundraising page, learn more about ALS Northwest, and make a donation, please visit http://secure.alsnorthwest.org/goto/PeakswithPurpose. Thank you!

Solar Eclipse

On the morning of August 21, 2017, I gather with several family and friends high on a southwest-facing slope under crystal clear skies.  Slowly the sun’s intensity begins to fade, the shadows cast by nearby trees become less distinct, the chatter of the birds in those trees dies down.  We fix our gaze across the valley at a long ridge about 30 miles away.  Having learned that the path of totality moves across the ground at about 8 miles per second, we know that when we see that ridge go dark, it will be our turn in four seconds.  And that is exactly what happens.

Like millions of others along the path of totality that day, we quickly remove our protective glasses and, for just under two minutes, we stare awestruck at the silvery disk of the moon, illuminated by the glow of a full earth, surrounded by the iridescent brilliance of the sun’s corona, all set against the eerily dark sky.  We wish desperately for this moment to linger, that we might savor this surreal display for much longer, but the laws of the universe do not acknowledge our desires.  The moment quickly passes, a moment we all know we are unlikely to ever experience again.

◊

This morning I rose early to catch the last phase of a lunar eclipse, another wondrous celestial event, even if much less rare or spectacular than a solar eclipse.  It brought back memories of that special day in 2017, along with an associated theological reflection I have often pondered. 

Eclipses, it seems, are bound to happen in just about any solar system like ours, where planets orbit suns and moons orbit planets.  Indeed, spacecraft sent out to explore our solar system have observed them on other planets.[1]  Nothing too unusual, if you think about it for a bit.

We on earth, though, experience an extraordinary circumstance.  The relative size of the sun and the moon, as viewed from earth, are virtually identical, which is what makes solar eclipses so spectacular.  If our moon was smaller (or farther away) we would get only a partial eclipse; if it was larger (or closer) we would not see the sun’s corona surrounding it, just total darkness (as this morning’s eclipse would have appeared if viewed from the moon).  This delicate alignment of size and position creates the conditions that have struck awe into human beings from the beginning of our history.

All of which can lead a person to wonder:  Why did this precise, unusual alignment occur in the solar system and on the planet which we happen to occupy?  And, separately:  Why does the occurrence of a solar eclipse cause humans across space and time to react with such intense emotions, whether of fear, wonderment, or joy?

The traditional response, across history and cultures, is that this must be the work of a power far greater than ourselves, one that not only created the world and universe that we occupy but also created us as beings who seek to make meaning of our existence and our experiences.  One might call this the religious response, and solar eclipses are just one small example of the phenomena that have generated this response throughout the ages.

An alternative response, more common in our modern era, is that there is no such design or intent to creation, that our universe and all life within it arose from an unknowable event and proceeded according to scientific laws, and that we should make meaning of our existence and experiences without resorting to supernatural thinking.  According to this response, which one might call atheistic, it is mere coincidence that the earth, sun, and moon align in a way that creates the solar eclipses we experience.

As I faced this morning toward the partially shadowed moon and contemplated these thoughts, I didn’t find myself drawn to either of these schools of thought, certainly not toward one to the exclusion of the other.  Rather, my overwhelming sentiment was simply, “However this came to be, I am awestruck, and I am grateful.”  As I considered this further, I was struck by the irrelevance of this dichotomy, of such either/or thinking.  What matters most, I reflected, were the sentiments that arose within me.

One of the founding principles of chaplaincy is that we meet people where they are in their time of crisis, and we help them use whatever tools they have—religious, spiritual, emotional, intellectual—to try to navigate their crisis in a way that is, for them, coherent, meaningful, and effective.  To help them move through the crisis and ultimately find peace, irrespective of whether they possess a religious or an atheistic orientation, or something in between.

I have long appreciated a saying of the writer Anne Lamott, which sidesteps the dichotomy of religious vs. atheistic thinking.  One way to think of God, she suggests, is simply as a name for whomever it is we are speaking to when we cry “Help!” “Thanks!” or “Wow!” when there is no one else around,[2] as most of us do from time to time.  I know that when I gazed at the lunar eclipse this morning I audibly uttered “Wow!” and when I remembered my wonder at the solar eclipse, I smiled and spoke a silent “Thanks!”  God remains beyond my understanding, but these spontaneous utterances are evidence of my belief that that there is a power far greater than myself toward whom I am grateful.

Photo credit to Bruce Alber, my friend profiled in Choosing Life, One Day at a Time. Bruce is a wonderful astronomical photographer whose photo of a comet heading toward the horizon at sunrise graces my home page. I am grateful to share that Bruce is still enjoying life, one day at a time.


[1] https://en.wikipedia.org/wiki/Solar_eclipses_on_Jupiter

[2] Anne Lamott, Help, Thanks, Wow: The Three Essential Prayers, 2012

I Am Hopeful

In our annual holiday letter to friends and family I wrote, “This year feels exceptionally heavy … but we remain determined to practice hope.  It’s the only thing we know to do—but the work is hard.  We draw comfort from the accompaniment that each of you offers us throughout the year.”

One of the people who gives me the most hope is my great-niece Gabby, a most amazing high-school sophomore living in my hometown of Kansas City.  Gabby has had to contend with more suffering—physical and emotional—from an early age than I ever knew, but it has given her insights and wisdom beyond her years.  Fortunately, she is also an extraordinarily gifted writer who isn’t afraid of tackling the hard stuff in life.  We have found each other to be kindred spirits despite the 55 years separating us.

So I wanted to start off the New Year by sharing a reflective piece that Gabby wrote two years ago; it received much acclaim at the time, and she has continued to refine it since.  As long as she and others of her generation are hopeful, I too am hopeful.

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I Am Hopeful

People often ask me how I continue to smile after all that’s happened. The polite ones wonder how I still laugh like I used to, while the blunt folks question how happiness still dances throughout me, how my heart still bursts with joy. The rest ask how I manage to wake up each morning and see the day through, how I continue to write and paint with the relentless passion that’s grown alongside me. They compare me to sunshine, as if light can’t exist alongside ruin. They call me strong, as if thicker skin is what I’ve dreamt of. Everyone asks how I’m still hopeful, but no one has stuck around to hear the answer.

If someone did choose to listen, even just for a moment, I’d explain that I still laugh, paint, and write, because I have no other choice. Hope is the last thing I have left to turn to, thrusting my broken heart into its arms, and begging for just one moment of peace. Praying for a day without the haunting of memories, and a vase full of something other than dried flowers. I’m forced to believe that time will mend my crimson wounds, but I don’t want the scars that linger, just a mere moment without pain. I go through the motions of each day with hope, not because I believe in lucky coins, or horseshoes, but because I have nothing else.

I hope one day for silence. A single moment without the endless chatter of my thoughts, or the grief that clouds my heart like a smoker and their diseased lungs. I hope that when I finally glue together the pieces of my soul and scraps of my emotions, I’ll be content. I wish upon every stupid star that one day my misery will end, and I’ll find myself painting something other than a troubled girl, but until then I’ll wait. I’ll lay in bed at night, clutching onto hope like a young boy and his teddy, waiting for the day when everything is better. Not because I’m hopeful for death, for I’m hopeful that one day I’ll be able to live.

Photo credit: A Student

The Matriarch

I enter the room of Tara, a woman in her early 40s dying of liver failure caused by alcohol abuse.  She transitioned to comfort care the day before.  She is lying in bed, her skin a deep yellowish green, her mouth wide open, breathing deeply.  On the far side of her bed, an older woman wearing a sweatshirt sits quietly, knitting.  She glances up with a look that tells me I am welcome to join her.

“I’m Chaplain Greg.  I’m so sorry this is happening.  How are you doing today?”

“I’m Jackie.  I’m just doing the mom thing.  Not much else to do at this point.  She’s my girl.”

“What would you like to tell me about Tara?”

“She’s too much like her dad,” Jackie proceeds, looking over at Tara.  “He drank too much, never stopped acting like a teenager, so I had to kick him out while she and her brother were still young.  I met Ray, a good Christian man, and he helped raise my kids like they were his own.  But when Tara hit her teens, her dad would take her out drinking, and it’s been a problem for her ever since.”

“I can only imagine how heartbreaking it would have been for you to watch that happen.”

“It was.  Don’t get me wrong, she’s been a wonderful daughter and mother, but she could never shake the liquor.  She was in here last month and got told that if she took another drink it might kill her, but I guess she didn’t believe it.  So here we are …”

“You mentioned Tara was a mother … how old are her children?”

“She had a son young, who’s now got a one year old daughter of his own.  She also had a son by another man, and he’s now five.  She had a lot to live for.”

“This must be so hard for her family, especially her younger son.”

“It is, but he’ll be OK.  We’ll raise him right, with God’s help.  We’ve got a strong family that will help, too.  He’s already in his uncle’s pocket.”

At Jackie’s request, we shared prayers for her many concerns.

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It’s been a rough few months for mothers of dying adult children, at least in my world.  On the same week that I visited Jackie, I accompanied the family of a woman killed in a motor vehicle accident—including her mother, husband and adult children—on an organ donor honor walk.  Sadly, though, the cause of death is usually alcohol or drugs—as was the case for Jackie, for Jean in the story A Hero’s Farewell, and for so many others …

In fact, I’ve been involved in so many situations like this during my brief chaplaincy career that it’s hard not to see an archetype emerge, embodied by Jackie.  Grief-stricken but steady at the bedside.  Loyal to their dying child despite the failings that hastened their child’s death.  Committed to the care of the family left traumatized by their child’s premature death.  And present, always present.

Like any archetype, this image of a matriarch never applies perfectly, nor in every situation, but it persists all the same.  Even when the patient’s situation isn’t grave—say, gall bladder surgery—it never surprises me to find a mother at the bedside.  I once teased my father for worrying so much about one of my adult siblings, and he responded, “When your children are adults, you’ll understand that you’re never done being a parent.”  I understand that now.

As a male, I often wonder in these situations, “Where are the fathers?”  They are sometimes present—and caring in the same way I described the matriarch—but more often not.  Perhaps they are no longer living—men do have a shorter life expectancy, after all.  Perhaps they split with the mother and became estranged from the family.  Usually their absence is simply never mentioned.  I won’t speculate further regarding the absence of fathers, but I can’t avoid noting it. 

This archetype has its roots a long way back … including one of the most famous matriarchs of all, who is celebrated by many at this time of year.

◊

Simeon came into the temple; and when Jesus’s parents brought in the child to do what the law required, Simeon took him in his arms and praised God.  Simeon then said to Mary, his mother, “This child is destined to be a sign that is rejected; and you, too, will be pierced to the heart.”  Luke 2: 27-35 [selected]

This passage comes from the same chapter of the Bible as many classic Christmas stories, but it’s rarely included—after all, that last sentence is not exactly “good news,” at least not in the traditional spirit of the season.  I also note that Simeon directs his prophecy solely to Mary—Joseph, the father, is already disappearing into irrelevance.

Jesus’s mother and brothers arrived [where he was speaking]. Standing outside, they sent someone in to call him.  A crowd was sitting around him, and they told him, “Your mother and brothers are outside looking for you.”  “Who are my mother and my brothers?” he asked.  He looked at those seated around him and said, “Here are my mother and my brothers!”  Mark 3: 31-34

This context makes clear that, by the time of Jesus’s ministry, his mother Mary had assumed the role of matriarch of the family that Jesus (and, though never mentioned, Joseph) has left behind.  Mark says nothing about how Mary received these words of Jesus, but it’s easy to imagine she would have been “pierced to the heart.”

Near the cross of Jesus stood his mother, his mother’s sister … and Mary Magdalene.  When Jesus saw his mother there, and the disciple whom he loved standing nearby, he said to her, “Woman, here is your son,” and to the disciple, “Here is your mother.”  John 19: 25-27

No matter how Mary felt about Jesus’s previous words, or anything else that transpired between them during the time leading up to his death, the gospels tell us she was right there at his side as he died.  And she was acknowledged by Jesus as the matriarch—not only of Jesus’s biological family, but also of at least one of the “brothers” who were seated around him in the earlier passage.

◊

This season I feel led to lift up the many mothers who have endured suffering, rejection, and loss, yet keep showing up, keep offering a steadying presence to their families in the face of seemingly unending challenges, and keep practicing hope despite abundant cause for despair.  I am blessed to encounter you everywhere I turn.  You are seen.  You amaze me and inspire me.  Thank you for your presence in my life.

Women on the Verge

Making rounds one morning, a nurse suggested I look in on Viola, age 74, who was having a procedure later that morning.  I reviewed her chart and saw that she’d appreciated visits from chaplains in the past.  I also saw that tests completed the day before had revealed advanced metastatic cancer.

Her room is dimly lit but she is sitting up in bed.  As I knock and enter, I see her eyes are closed. 

“Good morning, Viola, it’s Chaplain Greg,” I say softly.  “I know you have a procedure later this morning, so let me know if this isn’t a good time for you.”

“No, you’re right on time, Chaplain.  I’m just lying here praying.”

“What’s on your heart this morning?  I know you got some difficult news.”

Viola nods.  “I’ve been listening to the Lord, and the Lord’s telling me that He’s got this, just like always.  He’s telling me that there’s no work for me to do here, that it’s all in His hands, and all I need to do is relax and enjoy the ride.  So that’s what I’m focusing on doing.”

“Isn’t it wonderful,” I ask, “the ways God shows up for us in times of need?”

“You got that right, Chaplain.  I have been so blessed all my life, and I know I will continue to be blessed.”

We share a lovely time of prayer together, filled with gratitude for God’s presence and caring, and for the light God brings into our lives.

“Thank you, Chaplain,” Viola closes.  “Now you go carry some of that light to the rooms of other patients you see.  Thank you for the work you do.”

“And I thank you, Viola, for the gift of your prayers.  They give me the strength to keep doing this work.”

◊

It is always a gift to me to be in the presence of bedrock faith, something I often find in black women of a certain age, like Viola (or Aunt Julia).  Their faith has withstood crises and losses the likes of which I have never known.  It gives me hope that my own faith will carry me through the losses that undoubtedly lie ahead—that with faith, all things are possible, even if it’s a mystery as to how this is so.

◊

The next day I visit Maggie, age 88, who had learned two days before of the spread of long-dormant cancer.  Dressed in street clothes, she is trim and fit and looks at least 10 years younger than her chart indicates.  She’s on her phone but waves me in.

“I’m discharging soon—my son’s on his way—but I need to make sure my pharmacy has my prescriptions straight,” she says in a tone that is all business.

She soon hangs up, then looks at me.  “Are you here to say a prayer?”

“I certainly can, if that’s what you’d like.  What would you like me to know about your faith?”

“I’m an active Christian, raised Catholic but I’ve spent most of my life in non-denominational churches.  I’ve led music in many of them.”  She continues in the same matter-of-fact tone.

“And how is your faith showing up for you today?”

A long silence, then, “I don’t know.  I’m so confused.  I’ve had lower back pain for a long time, which I chalked up to aging.  But it got so bad I came to the ER, and now they tell me I have cancer in my bones and all over, and it’s not treatable.  I just didn’t see this coming.  I don’t feel at all prepared.”

“That’s really hard, Maggie.”  I extend my hand and she takes it.  “Shall we sit in silence for a moment?”  She nods, then begins to cry—weeping quietly at first, then with heaving sobs.

“This is the first time I’ve allowed myself to cry since I got the news,” she shares, as her sobs subside. 

“I think tears can be one of God’s ways to make us stop and pay attention, and to remind us of His presence.”

“That’s helpful.  I do feel God’s presence, I just hadn’t taken the time to notice …”

“So, is now a good time for that prayer?”  Maggie smiles, nods, and we join together in prayer.

◊

While charting my visit with Maggie I receive another request from the oncology floor.  Once again, it’s for a woman, Donna, whose condition has just been declared terminal.  I finish my note on Maggie and take a short walk to gather myself, then I knock on Donna’s door.

Donna is bald and a bit bloated, not unusual for someone who has been undergoing chemotherapy.  She thanks me for coming but then turns away.

“They told me the chemo I’ve been on, which was my last hope, isn’t working and there’s nothing more they can do for my cancer.  I’ve been praying so hard, and lots of people at my church have been praying, too.  My pastor and everyone is calling and texting and I don’t want to talk to any of them.”

“Does it feel like God has let you down?”

Donna nods and begins crying.  “Yes, that’s it exactly.”  We sit in silence for a minute, then she continues.  “Actually, no, that’s not how I feel.  I know God is here for me.  I’ve been through so much already, and God has never left my side.  I guess what I’m really feeling is that I let the people praying for me down.  I don’t want them to lose their faith in God because their prayers didn’t work.”

“Is that how you think prayer works?”

“Well … no.  I’ve known that I would come to this point eventually.  We all do, no one lives forever.  It’s just a shock to realize that I’m now at that point.”

“I think it’s probably shocking for everyone, no matter how strong their faith is.  It’s just really hard being human.”  She nods, and we sit quietly for a moment.

“As we’re talking, though, it occurs to me that you have a chance to show people what true faith looks like by letting them see how your faith supports you now, at this most difficult time.”

Donna brightens at this thought.  “Yes, it’s better for them to see how God really works.  I can do this.”

◊

In the span of just two days, I encountered these three women on the verge of life’s final chapter, each having just crossed the threshold from hoping for a cure to surrendering to mortality.  While their faith manifested in different ways, each had built, through a lifetime of faith, a storehouse of gratitude to see them through the rest of their days.

And, as I shared with Viola, each of these women energizes my own faith, adds to my storehouse of gratitude, and gives me the strength and motivation to keep doing this work.

Remembering Mr. White

On a Saturday afternoon in my 16th year of life, I am sprawled out on my bed with a book on the periodic table of elements.  I am absorbed by the table’s symmetry (and asymmetry), how minor variations in atomic structure make the difference between gas, liquid, and solid.  I pause to ponder why I’m choosing to spend my time this way, when my friends were in a nearby park tossing frisbees and smoking weed.  “Because this is weird … and interesting,” I say to myself, and return to my book.

◊

I credit this aberrant (for me) behavior to my chemistry teacher, Fred White, who died this month at 92.  New to my school at that time, he was kind, quirky, and fun, and he made his subject so interesting I didn’t want class to end … so I kept at it on my own time.  He explained in simple terms why carbonated beverages exude gas when shaken (H2CO3 + energy = H2O + CO2) and excited me with edgy (dangerous?) experiments like the beating heart and generating phosphine, which ignites spontaneously upon exposure to oxygen.  The more I learned the more I wanted to know … a hallmark of a great teacher.

Since entering middle school my goal had been to do just well enough to stay off everyone’s radar, but my fascination with chemistry was creating a problem.  I came into class one day to find my name on the corner of the blackboard, along two others at the top of my grade.  I asked Mr. White why my name was up there and he said, “recruiters from MIT are visiting, and they would like to meet with you.”  I asked, “Why me?” and he replied, “You might not have noticed, but you got an 800 on your chemistry SAT.”  He challenged me then and there to start thinking about myself differently.

I was far from the only student wanting to keep taking classes from Mr. White.  This being the early 1970s, he created a class on environmental science, introducing us to pivotal books like Silent Spring, which helped birth the environmental movement, and The Population Bomb—the latter serving as my first exposure in school to the topic of birth control.  He didn’t feed us these ideas as doctrine—he encouraged our full engagement but also challenged us to assess them critically.  Only now can I fully appreciate the subversive genius of this aw-shucks Midwesterner.

When my thoughts turned to college, Mr. White encouraged me to consider Reed, in Portland, OR.  Just before coming to my school, he’d received a grant from the National Science Foundation to obtain a Master’s degree from Oregon State University, which brought him into contact with students and faculty at Reed.  He said, “Boy, they are really bright—it seems like the kind of place you might fit in well.”  Helped, no doubt, by his letter of recommendation, I was admitted, and it is now my alma mater.

His caring went beyond the classroom.  A year after I graduated, I was home for a summer job, and I received a call from Fred (no longer Mr. White) out of the blue.  He said, “I’ve got a really neat new sailboat—I thought you and some of the others might enjoy taking it out with me.”  It was an afternoon I’ll never forget, not just for the good times shared but for reinforcing my still-fragile sense that I was a person a non-parental adult might care about, just for who I was.

Fred and I corresponded periodically as adults.  Upon the occasion of his retirement I wrote a letter to Fred telling him how much he had meant to me.  He responded with characteristic humility and humor.  “Such a satisfaction to know that one’s efforts were worthwhile in helping you toward a bright future … Those first few years at PHS covered the spectrum from agony to ecstasy … all awkwardness and broken glass.  We poisoned ourselves with regularity and relish.  My moderate liquor bill became more significant!  But we did have a good time and learned some good science.”

In 2001 I sent Fred a copy of Uncle Tungsten: Memories of a Chemical Childhood, by Oliver Sacks, and he responded quickly.  Beyond their shared passion for chemistry, Fred noted that he and Sacks were both born in 1933 and shared many memories of a boyhood growing up in the shadows of World War II—including collecting cans and newspapers for the war effort—albeit from opposite sides of the Atlantic.  Our correspondence opened up for me a whole new dimension of this marvelous and complex man.

◊

Now Mr. White is gone, joining the pantheon of those who shaped my life and now are but memories.   As a chaplain and friend, I often try to comfort those grieving loss by offering wishes that the memories of their loved one provide them with solace.  There is a traditional Jewish saying—”May their memory be a blessing to you”—that captures this succinctly.  Even better is sharing memories with others grieving the same loss.  It’s why my favorite memorial services are filled with stories of the one who has departed.  I have shared these memories with friends from those days who were similarly blessed by Mr. White, and I have listened to their stories in return, we have all been blessed in the process.

I think I can best sum up Mr. White’s impact on my life with a story … In 2000 I joined several community leaders to co-found a nonprofit called Oregon Mentors (now the Institute for Youth Success), dedicated to helping youth from all walks of life find supportive adults to help guide them toward adulthood.  During fundraising meetings or luncheons, we would ask those in our audience to think about a non-parental adult who’d made a big impact on who they are today.  We could count on the fact that, if they’d made it into one of those rooms, they almost certainly had such a person, and this immediately connected them to our mission.

Mr. White was always that person for me.  Who is it for you?  I’d love to hear your stories!